SCAD research project led by Dr David Adlam Leicester Biomedical Research Centre SCAD research
British Heart Foundation information and resources SCAD page
Leicester Biomedical Research Centre press release on the paper discussing the newly discovered genetic risk for atypical heart attacks in women, Association of the PHACTR1/EDN1 Genetic Locus With Spontaneous Coronary Artery Dissection, published in the Journal of the American College of Cardiology.
Dr Adlam discusses the genetics paper (see above).
The European Society of Cardiology European SCAD Registry
European Society of Cardiology SCAD Study Group information and video explaining the Registry.
A Dutch SCAD Registry is inviting SCAD patients in the Netherlands to register and complete a questionnaire.
Part of the European SCAD Registry – SCAD Poland.
SCAD France – Information and support for SCAD patients.
Mayo Clinic’s Youtube channel hosting videos about the SCAD research project initiated by Katherine Leon and Laura Haywood-Cory, who met on social media.
SCAD Alliance – American non-profit with a focus on raising awareness and coordinating multi-disciplinary collaboration.
SCAD Research – American non-profit with a focus on funding research carried out at Mayo Clinic.
Rare Connect is a safe, easy-to-use platform where rare disease patients, families and patient organisations can develop online communities and conversations across continents and languages. Beat SCAD created the SCAD Community.
Carolyn Thomas’ Heartsisters blog
SCAD UK & Ireland Survivors (closed group for those diagnosed with SCAD living in the UK and Ireland)
SCAD Ireland (closed group for those diagnosed with SCAD living in Ireland)
SCAD Family and Friends Support group (closed group for family and friends of SCAD patients)
SCAD Denmark (closed group for those in Denmark diagnosed with SCAD)
SCAD France (closed group for SCAD patients in France)
Netherlands SCAD (closed group for those in the Netherlands diagnosed with SCAD)
SCAD Community Sweden (closed group for Swedish SCAD patients)
SCAD Italy (closed group for SCAD patients in Italy)
Rest of the world
Australian SCAD (closed group for those in Australia diagnosed with SCAD)
Dissection spontanée de l’artère coronaire (DSAC) (closed group for French-speaking SCAD patients)
SCAD Nordic International Walker Group (closed group for SCAD patients interested in Nordic walking as a form of exercise)
SCAD Support Group (public group for SCAD patients and their families)
SCAD Survivors (global closed group for those diagnosed with SCAD)
SCAD Survivors New Zealand (closed group for SCAD patients in New Zealand)
For a list of US and Canadian SCAD Facebook groups see this comprehensive list on the SCAD Alliance website.