As well as the UK SCAD Registry and research in Leicester, there are some interesting studies going on elsewhere in the UK. We encourage the SCAD community to get involved to help improve the knowledge of SCAD and its impact on patients, partners and families, so if you're interested in taking part, please click on the links below.
SCAD in cardiac rehabilitation: an exploration of the lived experiences of patients
The study will involve interviews at four different time points that will each last approximately 30 to 60 minutes, and completing online questionnaires at the same time points that will take 10 to 15 minutes to complete.
Recruitment is closing at the end of July 2024 and only patients who have had a SCAD in April or May 2024 are now eligible!
Fitness tracker information pre- and post-SCAD
An exploration to see if people who have had a SCAD can successfully access and upload fitness tracker recorded physical activity information from three time points (4 weeks before the most recent SCAD event, and 6 and 21 weeks after their most recent SCAD).
The study (Can Spontaneous Coronary Artery Dissection (SCAD) survivors provide us with historical physical activity data from fitness trackers?) will improve understanding in the area physical activity in SCAD patients and the research team’s aim is to improve support and rehabilitation guidance for people who do not always fit into traditional cardiac rehabilitation programmes for a variety of reasons.
Professor Lis Neubeck, Professor of Cardiovascular Health in the School of Health and Social Care at Edinburgh Napier University discussed exercise and SCAD at our Conference in October and Coral Hanson (exercise specialist and Senior Research Fellow), who is leading this study, explained the research at about 26mins in this video.
Impact of SCAD on partners & spouses
Researchers are looking for partners and spouses of SCAD patients to explore their experiences, the impact of SCAD on them and what support they received and would have liked.
The research will involve a 60-90-minute online video interview.
Participants can live anywhere in the world.
Healthcare professionals' knowledge about SCAD
A research student wants to talk to GPs, cardiologists, exercise physiologists/psychologists and other healthcare professionals based in the UK about their knowledge, understanding and perceptions about SCAD. The study will involve one 30-60-minute interview.
For Patients...
What is SCAD?
Learn about Spontaneous Coronary Artery Dissection, who can be affected and how you can get support to help you on your post-SCAD journey
Symptoms & Diagnosis
Understand the symptoms of SCAD, tests to diagnose it, genetic variants linked to SCAD and the chances of a recurrence
Living with SCAD
This section discusses what your recovery might look like, the emotional impact of SCAD and practical things such as returning to work, travel and finances
SCAD Stories
Every SCAD patient’s experience is different, but you may find you relate to some of these stories
Support
You are not alone! We can help you find support within the SCAD community and with our Buddy Service
Associated Conditions
Read about other diseases have been found to have an association with SCAD
Research
Find out how to get involved in UK research and keep up to date with published SCAD studies