Conference 2018

Thanks to everyone who attended this year’s Conference. We had some fantastic speakers and we hope all the delegates enjoyed the day. See you next time!

Look out for videos of the presentations in the coming weeks.

Presentations

Beat SCAD – My how we’ve grown!

Dr David Adlam – Redefining SCAD

Dr Abi Al-Hussaini – SCAD & FMD

Dr Alice Wood – The evolution of SCAD

Dr David Adlam – Is SCAD in the genes?

Dr Abi Al-Hussaini – Pregnancy-related SCAD

Beat SCAD Summary of the day

Videos

Conference highlights

Together we will beat SCAD

Dr David Adlam – Redefining SCAD

Dr Abi Al-Hussaini – SCAD and FMD

Dr Alice Wood – Update on the research and studying sub-groups

Sally Bee – patient perspective and life after SCAD

Q&A Dr Adlam, Dr Al-Hussaini and Dr Wood

Dr Adlam – Research updates

Beat SCAD’s 2018 Conference will be held on Saturday 9 June at the Queen Elizabeth Hospital in Birmingham.

If you would like to make a weekend of it with your family, there are some fabulous local attractions close to the conference venue (see below) that they could attend on the Saturday while you are at the Conference. We are also investigating options for a walk on Sunday 10 June which will be suitable for all the family.

Birmingham Botanical Gardens | Birmingham Wildlife Conservation Park

Cadbury World | The Aquarium | The Science Museum

More details to follow, but in the meantime, please click here to complete the booking form. We look forward to seeing you in June!

Date: Saturday 9 June 2018

Time: 9.30am to 5.30pm – Registration 9.30-10.30am.

Venue: Queen Elizabeth Hospital, Birmingham

Price per delegate: £30 (includes lunch)

Parking

There are two options for parking:

Option 1 – University car park (approx 10-minute walk to the Hospital)

Pritchatts Road Car Park (at the junction with Vincent Drive)

Note, enter University of Birmingham Pritchatts Road car park B15 2QU in satnavs (if you just enter the postcode, you will be taken to the wrong address).

Price: FREE at weekends.

See https://intranet.birmingham.ac.uk/has/sustainable-travel/car-parking.aspx (Visitor parking tab)

Option 2 – Hospital car park

Please use CAR PARK A. The car park is underground (Level 0). The Hospital Main Entrance is on Level 3. There are stairs and lifts to all levels.

Price: £7.20 up to 8 hours. NB price goes up to £14.90 after 8 hours.

See www.uhb.nhs.uk/car-parking.htm. Payment is by cash or card when you leave, so please remember to keep your ticket with you. If you use this car park, we would strongly suggest car sharing to reduce your costs.

Anybody affected by SCAD (Spontaneous Coronary Artery Dissection) is welcome to attend.

Learn about SCAD

Our aim is to answer your questions, educate, inform and inspire you with all that life after SCAD has to offer.

Speakers include:

Dr David Adlam, who is leading the Leicester Biomedical Research Unit’s SCAD research programme

Dr Abtehale Al-Hussaini (Dr Abi) who worked on the research project and now runs a SCAD Clinic at the Chelsea and Westminster Hospital in London.

Dr Alice Wood, Clinical Research Fellow on the SCAD research programme.

The UK SCAD experts have seen more SCAD patients than anyone else in the UK. They will be giving an update on the research so far and answering your questions about SCAD, medication, FMD, pregnancy and more.

Meet patients, families and friends

Meeting other people who have ‘been there’ and ‘get it’ is invaluable for most rare disease patients, no matter how long ago they had their event. Family and friends also need support and the conference is an ideal opportunity to meet people who understand something about what those affected by SCAD are living with.

There will be plenty of opportunities to talk to other delegates during table discussions as well as more informal networking.

Get involved on the day

Our ‘Inspiration Board’ returns – why not bring photos of you doing something amazing after SCAD to share with the conference?
Submit your burning questions in advance for Dr Adlam, Dr Al-Hussaini and Dr Wood to answer on the day – look out for an email from us requesting your input
Take part in Q&A sessions during the day
Tell Beat SCAD how we can help YOU

Below is some information about some of our speakers and the subjects they will be covering. We will release more details over the coming weeks.

My, how we’ve grown!

The day will start with an update from the Beat SCAD trustees.

Re-defining SCAD: highlights from the European Position Paper (published February 2018)

Dr David Adlam, Interventional Cardiologist leading the UK SCAD Research Project, on how research across Europe and the world has changed what we know about SCAD. He will discuss:

what is SCAD?
incidence, demographics and recurrence
associations such as sex hormones and genetics
best practice in managing SCAD
the importance of referral to a SCAD expert

SCAD and FMD – How our understanding has changed

Dr Abi Al-Hussaini, Consultant Cardiologist, will explain Fibromuscular Dysplasia (FMD), its growing association with SCAD and what this means for newly diagnosed SCAD patients.

The evolution of SCAD research and the importance of studying sub-groups

Dr Alice Wood, SCAD Research Fellow, will discuss why studying sub-groups of SCAD patients, such as men, peri-partum women and those who have had recurrent SCADs, is so important to SCAD research. She will also explain how the research protocol has evolved from the original ‘research days’ attended by patients, to researching ‘themes’, such as measuring the impact of psychological stress of SCAD patients.

Adjusting to life after SCAD

Sally Bee, Heart Healthy Cook, Author and two-time SCAD Survivor, talks about what SCAD patients can expect after a SCAD, including understanding the grief process, recovery timelines, managing the family’s expectations, cardiac rehab and more.

International SCAD research and awareness

Dr David Adlam will update delegates on:

Current thinking on the heritability of SCAD and the UK Genome Wide Association Study
International SCAD collaboration efforts
Raising the profile of SCAD among all medical professionals

Pregnancy-related SCAD

Dr Abi Al-Hussaini will present a session about pregnancy during and after SCAD and how the new pregnancy SCAD Clinic at the Chelsea & Westminster Hospital can help. She will also discuss the latest thinking about contraception, peri-menopause and menopause.

Plus…

Panel discussions and Q&A sessions with SCAD experts.
Many opportunities for networking, support and friendship.

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Please click here to complete the registration form. You will then be directed to our online shop to pay for your tickets. Please note your place is not guaranteed until you have paid the delegate fee(s).

Closing date for registrations is Friday 1 June 2018.

Cancellation policy: We can accept cancellations up to 4.30pm on Friday 1 June 2018. Up to this date your booking fee will be reimbursed, however after this date it may not be possible to provide a refund.

If you are a new mum with a babe in arms and are thinking about coming to the conference please contact us for information.

Hotels near Queen Elizabeth Hospital, Birmingham

This is a list of hotels within a few miles of the Queen Elizabeth Hospital. The costs below are approximate and room only. Some hotels have free parking, others are chargeable. Distance from venue is listed after the price. Please note, we have not visited any of these hotels so delegates need to check that they are suitable and meet their requirements before booking.

Premier Inn Birmingham Central Hagley Road

Hagley Rd, Birmingham B16 9NY 0871 527 8082

£40-£60 per night/free parking

2 miles

Premier Inn Birmingham Broad Street Brindley Place

80 Broad St, Birmingham B15 1AU 0871 527 8076

£40-£60 per night/chargeable parking

2.6 miles

Premier Inn Birmingham City Centre New St Station

Exchange Buildings, Stephenson Street, Birmingham B2 4PY 0871 527 9442

£45-£65 per night/chargeable parking

3 miles