UK information and resources
SCAD research project led by Dr David Adlam Leicester Biomedical Research Centre SCAD research
British Heart Foundation information and resources SCAD page
Mayo Clinic information and resources
Mayo Clinic’s Youtube channel hosting videos about the SCAD research project initiated by Katherine Leon and Laura Haywood-Cory, who met on social media.
University of British Columbia information
A Dutch SCAD Registry is inviting SCAD patients in the Netherlands to register and complete a questionnaire.
Non-UK SCAD organisations
SCAD Alliance – American non-profit with a focus on raising awareness and coordinating multi-disciplinary collaboration.
SCAD Research – American non-profit with a focus on funding research carried out at Mayo Clinic.
Online heart forums
Carolyn Thomas’ Heartsisters blog
Facebook groups and pages
SCAD Survivors UK (closed group for those diagnosed with SCAD)
SCAD Family and Friends Support group (closed group for family and friends of SCAD patients)
SCAD Survivors (global closed group for those diagnosed with SCAD)
Australian SCAD (closed group for those in Australia diagnosed with SCAD)
Netherlands SCAD (closed group for those in the Netherlands diagnosed with SCAD)
SCAD Denmark(closed group for those in Denmark diagnosed with SCAD)
SCAD Support (for friends and families)
European online community
Fybromuscular Dysplasia patient group
FMD-BE is based in Belgium, but the website is in three languages, including English.