Beat SCAD Conference – postponed
Message from the Trustees – 19 March 2020
Following recent government announcements about the COVID-19 pandemic, it is clear that the current uncertainty will continue for many weeks, if not months.
In light of this, Beat SCAD Trustees have taken the difficult decision to postpone this year’s Conference. We know this will be disappointing for those who have booked to attend, but the safety and wellbeing of delegates and speakers is our highest priority.
We have no date yet for the rescheduled Conference, but we will let you know as soon as we can when it will be. The venue will remain the same and we are grateful to the University of Birmingham Conference team for their support.
If you have booked tickets for the conference, you have the following options:
- Your tickets will be valid for our rescheduled Conference. If you are unable to attend on the new date you will be entitled to a refund.
- If you would like a refund now, please email firstname.lastname@example.org so we can arrange this.
Hotel and travel bookings
Please check terms and conditions for any travel and accommodation bookings you have made. Some travel and hotel companies are offering changes or refunds on previously non-flexible bookings due to the COVID-19 situation.
If you have booked tickets for other people, please pass on this information to them.
The Beat SCAD Trustees would like to thank all our delegates for their support at this time and we hope to see you in the not too distant future at our rescheduled Conference.
Please email us on email@example.com if you have any queries.
Date: To be confirmed – The Conference has been postponed due to the COVID-19 situation.
Time: 9.00am to 5.30pm – Registration 9.00-10.00am.
Price per delegate: £35 (includes lunch)
Price: FREE during the conference.
Free car parking is available at the North East Car Park. The postcode for this car park is: B15 2SA
Alan Walters Building is R29 on the attached campus map and North East Car park is between G9 and G10 building.
Anybody affected by SCAD (Spontaneous Coronary Artery Dissection) is welcome to attend.
In 2018 we had almost 120 delegates, 68 of whom were SCAD survivors. We hope to make our 2020 event the biggest ever gathering of SCAD survivors in the UK and very much hope that you will want to come along. Partners, family members and friends are also very welcome to attend.
Learn about SCAD
Our aim is to answer your questions, educate, inform and inspire you with all that life after SCAD has to offer.
Confirmed speakers include:
Dr David Adlam, who is leading the Leicester Biomedical Research Centre’s SCAD research programme
Dr Abtehale Al-Hussaini (Dr Abi) who worked on the research project and now runs a SCAD Clinic at the Chelsea and Westminster Hospital in London.
Dr Alice Wood, Clinical Research Fellow on the SCAD research programme.
The UK SCAD experts have seen more SCAD patients than anyone else in the UK. They will be giving an update on the research so far and answering your questions about SCAD, medication, FMD, pregnancy and more.
Meet patients, families and friends
Meeting other people who have ‘been there’ and ‘get it’ is invaluable for most rare disease patients, no matter how long ago they had their event. Family and friends also need support and the conference is an ideal opportunity to meet people who understand something about what those affected by SCAD are living with.
There will be plenty of opportunities to talk to other SCAD patients, families and friends during the coffee and lunch breaks and this year we will look to introduce different networking activities to make it as easy as possible for you to talk with others.
Get involved on the day
- Our ‘Inspiration Board’ returns – why not bring photos of you doing something amazing after SCAD to share with the conference?
- Submit your burning questions in advance for Dr Adlam, Dr Al-Hussaini and Dr Wood to answer on the day – look out for an email from us requesting your input
- Take part in Q&A sessions during the day
- Tell Beat SCAD how we can help YOU
Outline timings for the day are below.
09.00-10.00 – Welcome coffee & networking
10.00-11.30 – Conference session
11.30-12.00 – Refreshment break & networking
12.00-13.30 – Conference session
13.30-15.30 – Lunch & networking
15.00-16.30 – Conference session
16.30-17.30 – Networking & conference close
Topics we are considering for the 2020 event, in addition to the latest research developments, include:
- Latest information about the connection between SCAD and FMD
- The impact of SCAD on mental wellbeing – options for self-help and more
- Improving the quality of Cardiac Rehab and looking beyond rehab towards exercising with confidence in the long term
- The real costs of SCAD research
- Separate sessions for those interested in:
- P-SCAD (Pregnancy SCAD) outcomes and the options for women wanting to get pregnant post SCAD
- How male SCAD is different
As the programme is developed further, we will share the confirmed topics here…
We will add a link to the registration form once a new date for the Conference has been announced.
Birmingham is at the heart of the UK and can easily be reached by rail or by car. There will be free car parking available at the venue. Most cross-country services to Birmingham arrive at New Street Station. Up to six trains an hour depart for the University on the cross-city line (ten minutes to University station, final destination Longbridge or Redditch). The Alan Walters Building is a ten-minute walk from University Station.
There are two hotels based at the University.
Edgbaston Park Hotel – From £88 per night
Lucus House Hotel – From £62 per night
Please note two rates are offered – a room rate and a bed and breakfast rate – to book the latter, once you’ve searched for the date(s) you want, you’ll need to scroll to the bottom of the booking page and open the ‘bed and breakfast rate’ tab. If you book the room rate only and then want to add breakfast, please email the hotel who can arrange it for you.
Other hotel options close to the University are listed below. Please note, we have simply listed the closest chain hotels and have not recently stayed in any of the hotels listed, so cannot guarantee standards.
A huge range of hotels are also available in Birmingham City Centre.
The Beat SCAD Conference will take place at the Alan Walters Building, within the centre of Birmingham University Campus. Please click here to access the full access directions on the University of Birmingham website.
We are offering sponsorship opportunities and exhibition space to both commercial and not-for-profit organisations wishing to take advantage of the Beat SCAD Conference as a way to support the charity and engage with participants and healthcare professionals. Details of the opportunities can be found here.
If you or your friends/family are interested in supporting Beat SCAD on 6 June, please email firstname.lastname@example.org.
If your employer has a commercial interest in supporting the work of Beat SCAD, or if they have a Corporate and Social Responsibility programme whereby employees can nominate charities for financial support, please pass this information on to them.
Please note that while Beat SCAD would be very grateful for support for our event, we cannot endorse any individual services or products being offered by any sponsors or exhibitors.