Conference 2016

Thanks to everyone who attended the conference on 12 November – it was a very successful day.

Below are links to the videos and presentations from the conference. We will add more in the coming weeks.

Videos

Beat SCAD video promoting our first year’s successes.

Dr David Adlam: What is SCAD?

Dr Abi Al-Hussaini: Grief and Anxiety

Nikki Gardiner: Cardiac rehab and exercise

Dr Abi Al-Hussaini and Nikki Gardiner: Q&A about SCAD and exercise

Harriet Mulvaney: SCAD and returning to work

Dr Abi Al-Hussaini: The psychological aspects of SCAD

Catherine Mulcaster: Psychology and self-help

Catherine Beck: How to talk to children after a parent has had a SCAD

Some of our delegates told us why the research was important, why meeting other patients is important, the impact of SCAD on families, and more…

Charlotte – the importance of the research.

Harriet – the importance of the research.

Christine – how has SCAD changed her outlook on life.

Harriet – how cardiologists can help SCAD patients.

Christine – the hardest thing to overcome following a SCAD.

Charlotte – the importance of meeting other SCAD patients.

Steve – the impact of SCAD on families.

Lauren – the impact of SCAD in families.

Presentations

Dr Adlam: What is SCAD?

Dr Abi Al-Hussaini: Anxiety and grief

Nikki Gardiner: Cardiac rehab and exercise

Harriet Mulvaney: Going back to work

Dr Abi Al-Hussaini – Psychological Impact of SCAD

Catherine Mulcaster – Psychology and self-help

Catherine Beck – Talking to children

Date: Saturday 12 November 2016

Time: 9.30am to 5.30pm

Drinks reception from 5.30pm

Venue: Leicestershire County Cricket Club

Price per delegate: £25

Includes lunch and evening reception.

Anybody affected by SCAD (Spontaneous Coronary Artery Dissection) is welcome to attend.

Learn about SCAD

Our aim is to answer your questions, educate, inform and inspire you with all that life after SCAD has to offer.

Dr David Adlam and Dr Abtehale Al-Hussaini (Dr Abi) who are leading the Leicester Biomedical Research Unit’s SCAD research programme are the UK experts in SCAD and have seen more SCAD patients than anyone else in the UK. They will be giving an update on the research so far and answering your questions about SCAD, medication, exercise and more.

Other speakers will provide insights into life after SCAD, including psychological issues.

Meet patients, families and friends

Meeting other people who have ‘been there’ and ‘get it’ is invaluable for most rare disease patients, no matter how long ago they had their event. Family and friends also need support and the conference is an ideal opportunity to meet people who understand something about what those affected by SCAD are living with.

There will be plenty of opportunities to talk to other delegates during table discussions as well as more informal networking, including the evening drinks reception.

Get involved on the day

  • Our ‘Inspiration Board’ returns – why not bring photos of you doing something amazing after SCAD to share with the conference?
  • Question bucket – submit your burning questions for Dr Adlam and Dr Al-Hussaini to answer on the day
  • Contribute to table discussions
  • Tell Beat SCAD how we can help YOU

We are planning a very full agenda, including:

  • What a difference a year makes: An update from the Beat SCAD trustees as we celebrate our first birthday.
  • What to expect during the first couple of years after SCAD: A session focused on the specific needs of SCAD survivors and their families in the early days after diagnosis. Panellists for this session include Sally Bee, Heart Healthy Cook, Author and Presenter on ITV’s Lorraine Show, and Dr David Adlam, lead researcher on the SCAD project. Among other things, Dr Adlam will explain what SCAD is, common symptoms and how SCAD can be managed once diagnosed.
  • Anxiety and exercise after SCAD: A session for those further along in their SCAD journey. Dr Abtehale Al-Hussaini and an exercise specialist will discuss some of the psychological effects of SCAD and how to exercise safely and with confidence.
  • Going back to work – or not: One SCAD survivor’s personal story and her practical guide to negotiating this complex process.
  • Managing the psychological aspects of SCAD: Panellists discuss why hyper-vigilance and anxiety is a normal reaction to SCAD and what help is available, how to access it, how to achieve resilience, and how to talk to our children about SCAD.
  • SCAD’s silver lining: A short discussion about the opportunities for Post Traumatic Growth (PTG).
  • Q&A session: Ask Dr Adlam and Dr Al-Hussaini questions about all things SCAD.
  • And much more…

The full agenda and timings for the day will be available to delegates a couple of weeks before the conference.

Registrations are now closed.

Below is a list of hotels near the venue. You can download this list here.

Premier Inn Leicester Fosse Park Hotel, Braunstone Lane East, Leicester LE3 2FW  Tel: 0871 527 8588

Premier Inn Meridian Business Park, Braunstone Town, Leicester LE19 1LU  Tel: 0871 527 8590

Aylestone Park Hotel, 69 Belvoir Drive, Aylestone, Leicester, LE2 8PB  Tel: 0116 283 3637

Holiday Inn Express Leicester City, Filbert Way, Raw Dykes Road, Leicester LE2 7FL  Tel: 0871 423 4896

Southfork Guest House, 464-466 Narborough Road, Leicester LE3 2FT  Tel: 0116 299 9960

Campbells Guest House, 17-19 Westleigh Road, Leicester LE3 0HH  Tel: 0116 254 6875

Ramada Leicester Stage, 299 Leicester Road, Wigston, Leicester LE18 1JW  Tel: 0116 288 6161

Spindle Lodge, 2 West Walk, Leicester LE1 7NA  Tel: 0116 233 8801

Hilton Leicester, 21 Junction Approach, Leicester LE19 1WQ  Tel: 0116 263 0066

Croft Hotel, 3 Stanley Rd, Leicester LE2 1RF  Tel: 0116 212 0327

Castle Park Hotel, 12 Millstone Lane, Leicester LE1 5JN  Tel: 0116 251 1000

Mercure Leicester The Grand Hotel, Granby Street, Leicester LE1 6ES  Tel: 0844 815 9012

Holiday Inn Leicester, 129 St Nicholas Circle, Leicester LE1 5LX  Tel: 0871 942 9048

Hotel Ibis Leicester City, St George’s Way,Constitution Hill, Leicester LE1 1PL  Tel: 0116 248 7200

Travelodge Leicester Central, Vaughan Way, Leicester LE1 4NN  Tel: 0871 984 6254

The Belmont Hotel, 20 De Montfort Square, Leicester LE1 7GR  Tel: 0116 254 4773

Leicestershire County Cricket Club is easily accessible from the M1, Leicester city centre and railway station.

Driving

From the M1 Motorway

M69/M1 Junction 21, take the A5460 along Narborough Road for approximately one mile. At the traffic lights at the junction of the Premier Travel Inn, turn right into Braunstone Lane. After approximately 3/4 of a mile turn right on to Duncan Road followed by first left onto Curzon Road. The ground entrance is directly in front of you.

* For satellite navigation please use the postcode LE2 8EB to gain access via the Curzon Road Entrance

From the City Centre and the Railway Station

Take the A594 (Waterloo Way/Welford Road) heading south. Pass Leicester Tigers Rugby Club on your right and follow signs for A426 towards Rugby. Join Aylestone Road and pass car dealership on the left. After one mile, turn left into Duncan Road, followed by first left into Curzon Road. The ground entrance is directly in front of you.

Car parking

The Car Park at the Curzon Road entrance to the ground (LE2 8EB) has capacity for 200 cars.

Travelling by bus

Bus information and timetables can be found at arrivabus.co.uk and firstgroup.com.