About Beat SCAD

Beat SCAD is a patient-led charity that aims to support SCAD patients and their families, raise awareness of SCAD and raise funds for research into the condition. Our mission is threefold: Awareness, Support and Research.

We want to:

  • Raise awareness of SCAD among medical professionals and those who have had a SCAD diagnosis
  • Provide support for SCAD patients as well as family and friends
  • Raise funds for research

Awareness

Many medical professionals only come across SCAD in medical textbooks. We want to increase awareness among care-givers, including GPs, nurses, cardiologists, cardiac rehab teams, paramedics, midwives and more. We also want to increase awareness and understanding of the condition among SCAD patients, their family and friends and the general population. We believe increased awareness will lead to earlier diagnosis and better outcomes for SCAD patients.

Support

For patients diagnosed with a rare or under-diagnosed condition, talking to and meeting someone who has ‘been there’, whether in person or online, is an important element in their recovery. For families of these patients, it’s often hard to understand the condition and the physical and psychological effects it can have. We hope this website will be a valuable source of support for anyone affected by SCAD.

Research

We work closely with the Leicester Biomedical Research Unit at Glenfield Hospital, which is the leading centre of excellence for SCAD in the UK. Funds we raise will be used to support research into the condition. The SCAD research project was initiated by a pro-active patient group. Watch the video below to find out more.

Medical information on this site has been obtained from the researchers at Glenfield Hospital.

The Beat SCAD team

Rebecca Breslin

Chair

Rebecca Breslin is a Clinical Data Manager living in Leicestershire. In March 2012, age 34, Rebecca suffered a heart attack caused by SCAD. Despite working on cardiovascular medical trials, Rebecca had never heard of Spontaneous Coronary Artery Dissection and soon realised that very little was known about SCAD so her quest for answers began.

Jackie Stopyra

Treasurer

Jackie is a qualified accountant running her own practice. She has gained a lot of experience over the years working with local and national charities. She is delighted to be able to be involved with such a worthwhile cause and looks forward to offering her expertise.

Karen Rockell

Secretary

In 2010 Karen was given a very successful liver transplant because she developed liver cancer due to an autoimmune condition. Six weeks later she had a SCAD heart attack. Finding no support for people who have had a SCAD in the UK, she turned to social media and found other survivors on a SCAD Facebook page. She has been actively involved in supporting SCAD survivors since 2012.

Debbie Oliver

Trustee

Debbie is Head of Production and Design at a media company in London. She had a SCAD heart attack at the age of 49 in September 2011. Having made contact with other survivors both in the US and UK, she became involved in meetings with the Leicester Biomedical Research Unit to discuss SCAD research.

About Beat SCAD

by | Sep 27, 2015 |