Frequently asked questions
Pregnancy after SCAD
Many women in the SCAD community despair at being told by their doctor that pregnancy after SCAD is too dangerous to consider, without facts or statistics to back up such advice. Some of the women already had one or more children but always planned more, whereas others were yet to begin their families and felt that SCAD had robbed them of the opportunity.
All SCAD survivors considering pregnancy should seek pre-conception counselling so they can be fully assessed, their individualised risk discussed and medications reviewed to ensure they are safe in pregnancy.
Dr Abtehale Al-Hussaini (known as Dr Abi) formerly with the Leicester SCAD research team is now in a Consultant post at Chelsea and Westminster Hospital in London and runs a SCAD clinic there. She also works with the High-risk Pregnancy Clinic at the hospital, which includes another cardiologist and obstetricians.
They have set up:
A pre-conception clinic where patients considering a future pregnancy can have their questions answered and get advice. The clinic can also advise on contraception and other issues related to SCAD.
A high-risk pregnancy clinic. This will be mainly for women who are already pregnant and will need a plan of care to be drawn up for them.
There is the capacity to have a one-off referral, or plan to deliver the baby at Chelsea. There will be access to the specialist midwife who will closely liaise with relevant teams as needed.
Please contact Dr Al-Hussaini using Abtehale.Alemail@example.com for advice on how to be referred or if you would like to explore using this service.
Dr David Adlam at Glenfield Hospital in Leicester is also happy to advise on pregnancy after SCAD. Please ask your GP or cardiologist to refer you to Dr Adlam using the NHS e-referrals system.
Contraception and Hormone Replacement Therapy (HRT)
Because women make up around 90% of the known SCAD population, and because SCAD may occur during and after pregnancy, it has long been thought that there might be a link between female sex hormones and SCAD. However, we really don’t know at the moment exactly how this works and any link that does exist is likely to be complex. At present there is no definitive evidence that hormonal contraception or HRT increase the risk of SCAD-recurrence.
For women of childbearing age, the most important aspect of contraception is to have a secure method which can reliably avoid unplanned pregnancy. It may be possible to achieve this without hormonal contraception (such as if a partner has had a vasectomy or with the non-hormonal copper coil). However, this is not always practical and barrier methods (condoms) are sometimes unreliable.
Where hormonal contraception is necessary, often a progesterone-based approach (such as the progesterone-only pill or progesterone-containing coil) will be recommended. Sometimes breakthrough bleeding can be an initial issue but this will often settle down over the first few months. Other forms of hormonal contraception are not necessarily precluded after SCAD but should be discussed with your doctors.
Many SCAD patients experience chest pain after SCAD. For some this pain is primarily cyclical, usually pre-menstrual. Anecdotally, cyclical symptoms like this may respond to damping down the menstrual cycle with a hormonal contraceptive (again usually progesterone-based). This can also be useful for women who suffer from excessive menstrual bleeding while on antiplatelet therapy – particularly if they have stents or need to take blood thinners in the long term – rarely endometrial ablation may be considered.
Systemic HRT is a balance of risks in all women and patients who have had SCAD are no exception. If the menopause can be managed without HRT, this is clearly the best and easiest option. If menopausal issues are mainly local, topically applied oestrogen (eg vaginally) may assist. For women with intrusive systemic menopausal symptoms, low-dose HRT options may be appropriate and is not contraindicated in SCAD.
As with all medication, contraception and HRT is a very individual matter that must take into consideration all pre-existing health factors. It should be discussed with either your GP or cardiologist. You may also wish to seek a referral to a UK SCAD specialist to discuss your requirements further.
Dental work after SCAD
Before you visit your dentist for a check-up, a scale and polish, or for more complicated work, please do let them know about your SCAD, perhaps share our SCAD for healthcare professionals leaflet with them and also tell them about any medication that you have been prescribed.
If you need pain relief for dental work to be carried out after SCAD, do bear in mind that the injection your dentist uses might contain adrenaline. For some SCAD patients this can produce palpitations and other unpleasant symptoms. Dentists can offer adrenaline-free injections if you ask for them.
Some dentists may be reluctant to treat a recently diagnosed SCAD patient, mentioning concerns about the possibility of a bacterial infection (for example at the site of a tooth extraction) entering the blood stream that could damage the heart, however there are no official guidelines to say that you should wait a certain number of months after your SCAD before treatment.
Flu and pneumonia prevention
The Flu virus can weaken the respiratory system, which the heart relies on, so it’s vital that people with heart disease get the Flu jab. The virus can also attack the heart muscle. If you have already had a heart attack, getting flu puts you at greater risk of having another one. Flu can be mild or severe, and you just don’t know which type you will have. The best way of treating Flu is to be vaccinated against it in the first place. There is an annual vaccination beginning in October or November each year.
Pneumonia can also have long-term consequences on the increased risk of heart attacks and strokes.
The potential impact of Covid-19 on SCAD patients is yet to be fully understood but it is thought that it might be possible to get both Flu and Covid-19 at the same time and that this might put heart patients at risk.
Many GP surgeries will automatically offer the annual flu jab and the longer term pneumonia vaccination to all heart attack patients.
Seasonal flu is typically seen in the UK between December and March, however, outbreaks can be seen as early as October and as late as May. If your surgery is unable or unwilling to offer you the jab in good time, you should be able to obtain it from your local pharmacy or (if you are pregnant) your midwife.
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