Beat SCAD exhibits at the London Maternity and Midwifery Festival

On Tuesday 1 March Beat SCAD exhibited live for the first time in over two years. And it wasn’t just Covid that we had to negotiate but a tube strike as well!

Trustee Sarah Coombes (pictured right) and volunteer Charlotte Pearl (pictured above) staffed the Beat SCAD stand at the London Maternity and Midwifery Festival at the Royal National Hotel in London.

Although the tube strike meant a smaller than expected audience on the day, Charlotte and Sarah spoke to about 40 delegates in depth. Some had heard of SCAD but others had not.  Our leaflets and pregnancy-related SCAD (P-SCAD) case studies were snapped up. Many attendees stood talking with us for a long time asking many questions and saying they would share the information they had learned with their colleagues.

Beat SCAD also spoke with the editor of The Student Midwife Journal and we are working on a ‘special report’ about SCAD for student midwives, which we expect will be included in the edition published in the first quarter of 2023. Work like this complements the inclusion of SCAD in the Myles Midwifery Textbook   and the NHS Mum and Baby App.

Dr Al-Hussaini, consultant cardiologist who specialises in SCAD, pre-recorded a ‘meet the expert’ session and this was viewed by delegates during their lunch break. She provided an outline of what SCAD is and how we believe it is under-diagnosed in pregnant and recently pregnant women. She discussed warning signs for SCAD in pregnancy and the post-partum period – in particular what symptoms should raise the alarm and what midwives should do if they suspect SCAD.

All presentations have been made available to both live and virtual attendees in a ‘box set’ for future review, so Beat SCAD’s information will reach an even wider audience in the months ahead.

Beat SCAD would like to thank Dr Al-Hussaini for her contribution to the event and Charlotte for spending the day with Sarah and raising awareness of SCAD with great enthusiasm and expert knowledge.

We were pleased to hear that in the delegate evaluations completed by those attending the event in person, there were 39 mentions of Beat SCAD with positive comments about the work we do.

We look forward to more opportunities to raise awareness of P-SCAD in the maternity sector. Click on the links below to read more.

P-SCAD

P-SCAD case studies

Dr Al-Hussaini’s SCAD clinic 

Beat SCAD awards £106,000 to UK research

We are very excited to announce that Beat SCAD has awarded £106,000 to help fund a new Clinical Research Fellow for the SCAD research project in Leicester.

Dr David Adlam, lead researcher, is currently recruiting the Research Fellow, who will be appointed for two years, starting August 2022. They will contribute to and expand the research already done by the team, as well as help Dr Adlam with clinic appointments.

Research done by previous Clinical Research Fellows, Dr Abtehale Al-Hussaini and Dr Alice Wood, as well as other members of the team, has contributed to important discoveries about SCAD, so we are committed to helping this important work continue.

Thanks to the incredible efforts and admirable determination of Beat SCAD supporters since the charity launched in November 2015, we have awarded more than £297,000 to support Dr David Adlam’s research in Leicester:

  • 2017: £25K for Dr Alice Wood’s PhD research
  • 2018: £3K for blood tubes for a genetics study (which led to the identification of a genetic risk locus, PHACTR1/EDN1)
  • 2018: £50K for Dr Alice Wood’s PhD research
  • 2020: £64K for Dr Alice Wood’s PhD research
  • 2020: £23K for Dr Alice Wood’s PhD research
  • 2020: £15.6K for genetics work
  • 2020: £7.6K for proteomics work
  • 2020: £3K for laboratory consumables

Dr Adlam said: “This [award] is fantastic news. As mentioned previously, it has been relatively challenging to get funding outside of Beat SCAD and it is likely that things would have come to an end without Beat SCAD. Many thanks once again to the Beat SCAD Trustees and all your fundraisers for this amazing award.”

Rebecca Breslin, Chair Trustee, added: “The Beat SCAD Trustees continue to be amazed and humbled by the drive and determination of the SCAD community, who are committed to the charity mission to raise awareness, provide support and fund research. We are so thankful to everybody who helped to raise these vital funds and enable the charity to work again with Dr Adlam to keep the UK SCAD research project moving forward.

“The presence of a Clinical Research Fellow at Leicester is also important to support the referral clinic service provided by Dr Adlam – which in turn is an essential educator to the Research Fellow, who will learn so much about SCAD directly from the patients.

“We are eagerly awaiting news of Dr Alice Wood’s work, which might steer some of the work of the new Research Fellow, and we are excited to hear news of an appointment and welcome the newest member of the Leicester team.”

More research to beat SCAD

We are now working to raise £25,000 to support the work of the new Clinical Research Fellow. Events hosted by the charity plus challenges completed by our amazing supporters will make this goal possible.

Please help by donating here or setting up your own fundraising page.