Beat SCAD virtual event 7 November 2020

It’s our fifth birthday! Join us for a research update from the UK SCAD experts, celebrate our achievements over the past five years and hear about our plans for the future!

When: Saturday 7 November at 10am

Tickets: £10 per person Click here to register

Five years ago, patient-led charity Beat SCAD was launched by founding Trustees Rebecca Breslin, Karen Rockell and Debbie Oliver. In 2018 they were joined by Harriet Mulvaney and Sarah Coombes. 

Five years on we have raised awareness, supported those affected by SCAD and donated thousands of pounds to further research into this potentially devastating condition. All while watching the UK and Ireland SCAD online survivor community grow to more than 800 people.  

Do join us for:

  • A review of our achievements to date and a first glimpse of what the next five years will look like
  • Research updates from Dr David Adlam and Dr Alice Wood
  • Q&A session – click here to submit your questions in advance so that we can cover as many subjects as possible on the day.

The event will be hosted via Zoom, so you will need a broadband connection to take part. If you don’t already have Zoom on your device, you can download it here for free: 

Click here to register for the event

We look forward to seeing you. 

The Beat SCAD Trustees. 

Mum & Baby app includes SCAD information

The Mum & Baby app, created by NHS Central London, now includes information about SCAD and heart health.

Back in January, when Trustees Sarah Coombes and Karen Rockell attended the London Maternity and Midwifery Festival, they were approached by Fiona Ghalustians, Senior Project Manager, Maternity Transformation Programme, North West London Collaboration of CCGs, who was updating content in the Mum & Baby app.

She asked if we could provide some information about heart health and pregnancy, including SCAD, for the app, which is produced by the NHS Central London (Westminster) CCG (Clinical Commissioning Group). The app is for women who are pregnant or have given birth and helps them navigate their maternity care choices in England. Downloads for previous versions have topped 10,000.

The most recent MBRRACE report, published in December 2019 and covering 2015-17, found that while giving birth in the UK is very safe, heart disease remains the leading cause of death, accounting for 48 (23%) of the 209 deaths reported during pregnancy and up to six weeks after giving birth out of the 2.28 million women who gave birth during this time period.

The report noted that heart disease can occur for the first time in pregnancy, so including information about heart health in this app was very timely.

Indigestion symptoms that don’t respond to indigestion remedies, chest pain, severe breathlessness or a persistently racing heart are all red flags that should be investigated.

We were very pleased to be able to provide content for both a general Heart Health section and separate sections about SCAD in pregnancy or the post-partum period.

The app can be downloaded from the iTunes or Google Play stores.

Beat SCAD was delighted to have been involved in this project, in the same year that detailed information about SCAD was included for the very first time in The Myles Textbook for Midwives 17th Edition. Both projects have raised awareness of SCAD among midwives and the general public.

Christmas card winners

We have great pleasure announcing the winners of our Christmas card competition.

Thanks to everyone who entered. There were some fantastic entries and the judges found it very hard to choose the winners. But we eventually decided on four winning designs.

They are…

Jo Davies, with her Holly and heart berries design using the Beat SCAD heart icon.

Oliver Heaton, aged 8, whose fun design features painted red-nosed reindeer.

Sarah Mackay, with a beautiful Sledging drawing and a clever use of part of the Beat SCAD logo as a tree.

Taegan Webley, aged 15, who has also referenced the Beat SCAD logo and added hanging heart decorations.

Congratulations to you all. Your designs will be winging their way to the printers shortly and will be available in the shop in late September.

SCAD included in European clinical practice guidelines

The new European Society of Cardiology (ESC) 2020 Acute Coronary Syndromes (ACS) Clinical Practice Guidelines have been published and we are very pleased that SCAD has a section for the first time.

These guidelines are for the management of ACS in patients presenting without persistent ST-segment elevation.

Key points are that:

  • SCAD accounts for up to 4% of all ACS
  • but the incidence is reported to be much higher (22-35% of ACS) in women under 60 years old, in pregnancy-related heart attacks, and in patients with a history of fibromuscular dysplasia (FMD), anxiety or depression.

The guidelines say that as SCAD may be missed or not be detectable using coronary computed tomography angiography (CCTA), intracoronary imaging, such as optical coherence tomography (OCT) and intravascular ultrasound (IVUS) may be more accurate options for diagnosis.

Conservative management is preferred, except for high-risk patients, but the optimal treatment is unclear as there have been no randomised clinical trials.

Click here to read the guidelines – SCAD details are on pages 37-38 section 6.1.5.

The statistics reported in the guidelines support our view that the diagnosis of SCAD and the treatment and support of SCAD patients should be included in Government strategies for heart disease. To achieve that Beat SCAD has been involved in consultations both in Scotland in collaboration with the BHF Scotland, and as a stakeholder organisation for the new NICE. guidelines on ACS, which is due for publication on 18 November.