Current SCAD research projects
The UK research project at the Leicester Cardiovascular Biomedical Research Centre is funded by the National Institute for Health Research Rare Diseases Translational Research Collaboration and Beat SCAD.
The research was patient-led from the start when Rebecca Breslin (Chair of Beat SCAD, pictured seated above), approached Dr David Adlam (pictured second from the right above), having made contact with a number of SCAD patients in the UK. More than 500 patients are now registered for the research.
The photo above was taken in August 2013 at a meeting between 14 SCAD patients, Dr Adlam and Dr Gulati (pictured far right) from the Mayo Clinic at the Leicester Coronary Biomedical Research Unit.
Initial funding was provided by British Heart Foundation to see 100 SCAD patients for research days where various tests were carried out. That funding has now finished.
Also patient-led, the research programme at the Mayo Clinic in the US was kickstarted by two SCAD patients who met on social media. Dr Sharonne Hayes is leading the research and she and her colleagues have published some papers detailing their results so far.
A Canadian SCAD research project at the University of British Columbia is being led by Dr Jacqueline Saw.
An Australian SCAD research project is taking place at the Victor Chang Cardiac Research Institute, again in conjunction with patients who wanted answers.